Autoimmune Support Awareness London a is charity set up by Asal Shirazi. Asal realised that there was not enough information and help out there for people suffering from the disease. This site has been to setup as an information source for the general public.
Asal was diagnosed with a rare autoimmune condition about 12 years ago. It was believed to be triggerd by something in the environment and stress. She was originally given 6 months to live and suffers from the diffuse systemic Scieroderma with heart and lung involvement and other systemic implications.
She spends a lot of time in hospital undergoing chemotherapy to help slow down the progression of the disease. While spending many hours in hospital she has met many people who suffer from the same skincare conditions as her. So she decided to develop a skincare range that helps people with skin conditions such as eczema and psoriasis. Visit www.jeunvie.co.uk to view Asal’s Award Winning skincare product range.
Asal was awarded the Chevalier Medal at the Innova Exhibition for her outstanding charity work and help to others despite her own condition.
Asal Shirazi suffers from 4 autoimmune conditions which affect and compromise the quality of her life significantly.
One condition, systemic cutaneous scleroderma, has limited her life expectancy. In this disease her immune system is shutting down her vital organs but specifically heart and lungs. Her own description is,”slow death”.
She also suffers from severe forms of Sjogrens*, Raynaud’s** syndrome and Arthritis. These also overlap with eczema and other related conditions.
It has been difficult to explain to her friends and relatives what conditions she suffers from and how it affects her life. There is no particular charity or site in the UK designed to give public information and awareness of such chronic diseases. Although, there are dedicated charities to the individual conditions.
She decided to set up a group for the Autoimmune Support Awareness in London. This group would educate the public on autoimmune conditions and give an overview of conditions, connect people and to increase awareness. Hoping to raise funding for research and clinical trials which are paramount to finding a cure.
Increasing awareness of any chronic disease can lead to further understanding and hopefully research and ultimately a cure.
Our intention is to connect our communities and educate the general public on all manners of autoimmune conditions, from Eczema, psoriasis to MS and autism. Uniting everyone in one cause as the incidence of autoimmune conditions is on the increase.
Asal has a limited life span and a poor quality of life but we are hoping to make a difference to those who suffer from rare conditions to at least increase quality of life even if no immediate cure is in site.
Please help in giving your time, services and expertise to make a difference to someone’s daily life.
*Sjogren’s (SHOW-grins) syndrome is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth. The condition often accompanies other immune system disorders, such as rheumatoid arthritis and lupus.Aug 9, 2017
Sjogren’s syndrome also have one or more of the following:
Joint pain, swelling and stiffness. Swollen salivary glands — particularly the set located behind your jaw and in front of your ears. Skin rashes or dry skin. Persistent dry cough. Prolonged fatigue and pain.
In Asal’s case and most others with the severe form, Sjogren’s syndrome, the immune system first targets the glands that make tears and saliva. But it can also damage other parts of your body, such as:
A very unpleasant condition which is also highly associated with Non Hodgkins Lymphoma.
With Raynaud’s, arteries to your fingers and toes go into vasospasm when exposed to cold or stress, narrowing your vessels and temporarily limiting blood supply. Over time, these small arteries can thicken slightly, further limiting blood flow.
There are two main types of the condition.
Also called Raynaud’s disease, this most common form isn’t the result of an associated medical condition. It can be so mild that many people with primary Raynaud’s don’t seek treatment. And it can resolve on its own.
Also called Raynaud’s phenomenon, this form is caused by an underlying problem. Although secondary Raynaud’s is less common than the primary form, it tends to be more serious.
We invite sufferers of any auto immune disease to give us their own self help success stories so we can reach out to others.